已出版的中文書
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文學小說
更新日期:
2010-03-04
So Much for That: A Novel
Lionel Shriver
Harper
March 2010
436p
書籍編號:
01-713
已有樣書,歡迎索書審閱!
● 內文簡介

*重量級書評家角谷美智子(Michiko Kakutani)在《紐約時報》上發表一篇推薦本小說的精彩文章(全文貼在下)
*美國邦諾書店評選為「夏季選書」
*《紐約時報》四月份「編輯選書」
*已授權出英、美、法、瑞典、義、荷、巴、德
、匈、以色列、土耳其、西、芬等13國語文
*2010年美國國家書卷獎的決選小說


記者出身的女作家蘭諾‧絲薇佛在創作小說時,總帶有強烈的社會責任與人文關懷,像是繼承狄更斯關心社會的傳統,也有後現代派對實驗技巧的迷戀。2005年,她以關懷少年犯罪為題的小說《凱文怎麼了》不僅摘得英國柑橘獎,更引發社會大眾討論。而最新小說力作《生命的盡頭》(So Much for That)同樣走關懷社會路線,以兩個被巨額醫療費步步逼退的家庭為故事軸心,探討時下許多家庭因無力支付龐大醫療賬單而選擇放棄治療的故事。

你收到多少金額的醫療賬單

會讓你絕望地選擇放棄生命

故事描寫:謝普是位負責顧家的好男人,與朋友合夥經營一家裝修公司,將賺來的每分錢投資在家庭裡,讓妻女過著不為五斗米折腰的生活。但在金融危機帶來的低迷經濟下,他開始擔憂未來,也害怕投資公司的資金隨時可能被低景氣拖垮,於是他想提前退休,帶著妻女離開美國搬到一個低消費的國家安度晚年。他調查各國的消費指數後,認為東非的海岸熱帶小島最適合他們居住。唯有在那裡,他的錢才不會貶值。最後他以100萬美元賣掉公司的股權。

妻子格琳妮絲得知他的荒謬想法後,完全不認同,甚至不願意搬離大城市生活。畢竟她才26歲,逃到一個熱帶小島安度晚年未免言之過早。無論謝普怎麼說服,她就是不點頭。最後倆人爭吵到感情轉淡了,形同陌路地生活在同一屋簷下。就在倆人處於冷戰期,格琳妮絲被診斷罹患一種非常罕見的癌症,讓謝普哪裡也不去,專心照顧生病的妻子,並眼見她日漸憔悴卻愛莫能助。為了醫治格琳妮絲,謝普決定讓妻子住進醫院接受最好的醫療團隊,但醫生開出的天價醫療費已超出他畢生積蓄,頓時陷入籌不出醫療費的徬徨與無助。

謝普的一位好友傑克遜得知此事後,以過來人身份表達自己瞭解「病」帶給家人的痛苦,因為他16歲女兒的大部分生活就是消耗在嘗試每一種新治療法。傑克遜與妻子卡蘿為了不讓女兒覺得自己拖累父母或有受到冷落的心情,他們夫妻一直守在她身邊,陪她走過每一天。日子久了,傑克遜自己也病倒了,卻還是得在吸血鬼般的醫療體制裡忍受病痛,及傷神那個永遠填補不滿的醫療費用黑洞。

謝普眼見自己賣掉公司股份作為退休金的儲蓄逐日遞減,很快就支付不起醫療費時,格琳妮絲說服他放棄吧,但謝普因為愛她而放不了。

謝普與傑克遜這對同病相憐的好友,在被現實的醫療給付擊垮之際,他們商量決定搬到東非的海岸熱帶小島,讓病人有尊嚴走完最後的生命。孩子們在魯賓遜式的生活下快樂成長,無師自通學會當地的斯瓦希里語,而比鄰而居的阿拉伯人和非洲人視他們是當地的保護人和建設人。在這片土壤上,格琳妮絲找回健康自己的溫柔、親密體貼及苦中作樂的幽默感,並沐浴著桑吉巴海面的海風,平靜地離去。

作者在近期專訪時提到,當初寫這部小說只是想寫一個關於「生病」本身的故事,描述當你目睹最親愛的人被病魔折磨到日漸憔悴,又或當生病成為你日常生活中的一部分時,你會如何對生命能做出最有尊嚴的選擇。

 

● 作者簡介

 

● 媒體報導

New York Times, March 2, 2010

America’s Health Care Crisis Visits Families, and Stays

By Michiko Kakutani

SO MUCH FOR THAT By Lionel Shriver

A novel about the health care crisis in America? Well, Lionel Shriver’s new book, “So Much for That,” doesn’t tackle health care head-on, but in recounting the intertwined stories of several characters suffering from medical conditions — ranging from the most grievous and deadly to the more cosmetic and absurd — it creates a harrowing picture of the fallout that the current health care and insurance system can have upon regular, middle-class families struggling to care for their loved ones.

This description might suggest that Ms. Shriver has constructed a didactic or lugubrious novel, willfully topical and laboriously relevant. She hasn’t. In fact, she’s managed to take an idea for a kind of thesis novel and instead create a deeply affecting portrait of two marriages, two families, as cancer in one case and a rare, debilitating childhood condition in the other threaten to push their daily lives past their tipping points.

Though there is one farcical plot development that is poorly woven into the emotional fabric of the story, and though some of the asides about health care feel shoehorned into the narrative, the author’s understanding of her people is so intimate, so unsentimental that it lofts the novel over such bumpy passages, insinuating these characters permanently into the reader’s imagination.

When we first meet him, Shep Knacker is contemplating the Big Escape. For years, he’s fantasized about what he calls “The Afterlife,” about using the money he made selling his handyman-home repair business — some $700,000 — and taking his family off to a faraway, third world country, where his savings will last them forever, and they can lead the good life.

His wife, Glynis, has made him postpone these plans for years, and now he’s decided that if she tries to delay their departure again, he will proceed without her. He hates working for the man he sold his business to; he hates the daily commute from the suburbs; and he likes the image of himself as a guy willing to press the Eject button — someone with the guts to get off the New York City treadmill and chase after his long-held dream.

Shep’s pipe dream is blown to smithereens when it turns out that Glynis has an announcement of her own: she’s been diagnosed with mesothelioma, a type of cancer associated with exposure to asbestos, and in her case, a deadly form with terrible survival odds. Glynis’s cancer turns everything in their life into a Before and After, and it indelibly alters their relationship.

Glynis, usually the pessimist, embraces every shred of hope she can find, convinced she can beat the illness, while Shep scrolls through the Internet late at night, reading up on mesothelioma and brooding over the terrible side effects of chemotherapy. He determinedly focuses on her care: not only serving as her nurse, but also cooking their meals, cleaning the house, filing her medical forms, while kowtowing to his hated boss because he knows that if he is fired, they will lose their precious medical insurance.

“He would do anything to make Glynis more comfortable,” Ms. Shriver writes, “or to keep her from going to any trouble. He would do anything to save her.”

Always headstrong and critical, Glynis turns her rage at getting sick on her husband. She cruelly suggests that the asbestos that caused her illness came from his work as a handyman (when in fact her own career as an artist who worked with metal is what brought her into contact with that dreaded insulation material); snippily sends back the meals he’s thoughtfully cooked for her; sends him on wild goose chases to pick up things for her in the city; and mocks every effort he makes to accommodate her as patronizing and insulting. She rages against her mother and sisters, denounces old friends, and takes perverse, schadenfreude-like interest in the woes of others — including the victims of Hurricane Katrina.

Just as Ms. Shriver created an uncompromising portrait of a killer and his mother in “We Need to Talk About Kevin,” so she does little in these pages to whitewash Glynis’s anger — and often appalling outbursts. Instead she manages to convey Glynis’s fear and bewilderment and isolation. What it’s like, especially as her illness progresses, and the chemo takes more and more of a toll on her body, to have to stop thinking about the future and simply focus on getting through that afternoon or evening. What it’s like to see others jogging or working out when it’s a struggle for her simply to walk up the stairs to her bedroom. Disasters reported in the morning newspaper, relatives’ difficulties and complaints, the weather outside that day are all equal to Glynis:

“There were no big things and little things anymore,” Ms. Shriver writes. “Aside from pain, which had assumed an elevated position of awesome sanctity, all matters were of the same importance.”

At the same time, Ms. Shriver uses the gift for psychological portraiture showcased in her last novel, “The Post-Birthday World,” to give us a nuanced understanding of Shep’s state of mind as he copes with troubles that grow more Job-like every day: an increasingly critical boss, who is sick of his taking days off to tend to Glynis; news that his elderly father is in the hospital and will need to be moved to an expensive nursing home; worries about how his two children are coping with their mother’s illness; and rapidly dwindling savings (once meant for the Afterlife), which could lead him into bankruptcy. His sense of duty and responsibility are made palpable to the reader — not in a trite or sentimental manner, but as the strivings of a decent man to take care of his family, to do the necessary thing.

The travails of Shep’s best friend and colleague, Jackson, are no doubt meant to serve as a sort of narrative counterpoint, but there is something self-consciously contrived about his dilemmas. Jackson is an autodidact and a noisy libertarian, continually — often comically — ranting about the government, insurance companies, people who game the system.

His wife, Carol, like Shep, is one of those people miraculously capable of stoically handling whatever life throws at them; years ago she took a stultifying job at I.B.M. so they could get medical insurance that would cover their daughter Flicka, who suffers from a genetic nervous system disorder called F.D., or familial dysautonomia, which requires enormous amounts of special home and medical care.

“Though outsiders would never have guessed,” Ms. Shriver writes, “Carol was much more of a nihilist than her husband. She sat for hours numbly at her computer doing sales outreach for I.B.M., filled the humidifier in Flicka’s bedroom before fetching a new roll of Saran Wrap for their sadly plastic version of tucking their daughter in, and for years had risen wearily at 1 a.m. to pour the first of the night’s two cans of Compleat into Flicka’s feeding bag — all without any sense of mission. She just did it.”

Jackson’s abrupt decision to have some expensive and ridiculous cosmetic surgery are never made plausible to the reader — it’s hard to imagine anyone of his intelligence taking such a risky and impulsive step, especially without consulting his wife — but Ms. Shriver does manage to make the snowballing consequences of that terrible choice emotionally real. It remains clear to the reader that Ms. Shriver has set up all these medical story lines — involving Glynis, Flicka, Jackson, and Shep’s father — to explore the plight of middle-class Americans squeezed by the current health care system, but it’s a testament to her gifts as a novelist that she turns this schematic outline into a visceral and deeply affecting story, a story about how illness affects people’s relationships, and how their efforts to grapple with mortality reshape the arcs of their lives.